Yesterday the first of many long days at Johns Hopkins.
As part of this treatment he will be receiving IV infusions of brentuximab vedotin & ipilimumab. This is still a form of chemotherapy but “targeted” & a much less toxic salvage treatment option. The study lasts 14-16 cycles. Each cycle is 21 days. We’re expecting to be participating through May 2016.
Obviously this is a long road. There’s no promise that he won’t require further treatment after this is complete. There are a lot of things up in the air, questions yet unanswered.
Thursdays are going to be a rough day for a while.
He felt okay last night but I nodded off somewhat before him. I’m afraid to wake him now for fear he will be in pain or some other distress.
I got up & did some really basic yoga. And I cried the whole time. I don’t tend to let people see that. Actually I don’t tend to allow myself to feel that. This morning though… all feelings.
ampersandinterrobangme 