Breaking the silence (& an update)

Yesterday the first of many long days at Johns Hopkins.

As part of this treatment he will be receiving IV infusions of brentuximab vedotin & ipilimumab. This is still a form of chemotherapy but “targeted” & a much less toxic salvage treatment option. The study lasts 14-16 cycles. Each cycle is 21 days. We’re expecting to be participating through May 2016.

Obviously this is a long road. There’s no promise that he won’t require further treatment after this is complete. There are a lot of things up in the air, questions yet unanswered.

Thursdays are going to be a rough day for a while.

He felt okay last night but I nodded off somewhat before him. I’m afraid to wake him now for fear he will be in pain or some other distress.

I got up & did some really basic yoga. And I cried the whole time. I don’t tend to let people see that. Actually I don’t tend to allow myself to feel that. This morning though… all feelings.

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